Patterns, Light, and Fibromyalgia; A Symptom Often Unknown or Overlooked by Physicians

http://www.fibromyalgia-symptoms.org/vision-and-fibromyalgia.html

I went to my doctor’s office last week to deal with a sinus infection I obtained from the flu. I already felt incredibly tired just getting to the office and was not prepared for what I felt next; it’s not something I consciously notice that often anymore. I was ushered into a room that was on the 10th floor with a great view overlooking our hills and the city. I was asked to take a seat on the patient table, which I did. I looked up as the nurse assistant closed the door and my eyes went bonkers. There on the wall in front of me was a bright yellow paint and a chair with bright yellow circles centered in the middle. The entire bank of windows, on two sides of the room, were covered in blinds that were open with slats, but not raised.

I tried to stay seated on the table but got up after only two minutes. I felt dizzy and my head was now aching. The circles and slats were jumping up at me! When my doctor came in, I explained why this was not a great room for fibromyalgia patients. He said he thought it was a nice room. When I explained about patterns and my perception, along with the consequences, he reacted as if he had never heard of this before. Overwhelmed with being ill for some time and the new infection, I let it go. However, it struck me that most general physicians do not know about this symptom, despite the reality that for us, it is a very important symptom.

The manner in which certain patterns effect my pain and create a sense of being overwhelmed is something that I deal with every time I go out. I have learned to take in visual information in pieces, I have also learned that when I already feel flared it is time to create a boundary when shopping.

Department stores are at the top of my list for pattern overwhelm. Whenever I enter one, I quickly go to the area I wish to look in and ignore the rest. If I plan on being inside one of these overwhelming areas for longer than a half hour, I already know I won’t be doing much else. Patterns create headaches for me. They also literally make my eyeballs feel like they are bouncing to a disco beat. This makes it next to impossible to make a decision about what to purchase or even which way I want to turn next. They make me feel uncomfortable, they make me feel like I am losing my balance. In short, they make me feel horrible.

Any task that I need to do when my pain is higher than a level 3 is increased in its difficulty when it involves stacked, colorful, patterned objects. Groceries, driving (especially at night), department stores, walking, even sitting all become twice as hard or even simply unbearable. As I stated, I have learned to compensate. However, considering how much it effects me, why doesn’t my physician know about this symptom? This question leads me down another path of exploration. My cognition issues after being rear-ended.

I still have cognitive issues, three years after being rear-ended. It mostly involves multi-tasking, multiple “things” going on at the same time that demand my attention, and problem solving. I can solve problems but I need additional time. Sometimes, until the next day or longer. Getting back to the patterns exploration, I have been told that my PTSD caused my cognitive issues, but never that my fibromyalgia might also play a part as my eyes already struggled not feel overwhelmed. For the majority of the last three years being overwhelmed was a 24 hour a day feeling. Of course this was not all my eyes, not at all, but what if they played a part that I could have managed? It would have been good to have a doctor talk to me about this symptom of my existing fibro and direct me to create a tool to help manage it.  Ah, doctors. I just have to smile.

Fibromyalgia, Nature or Nuture, or Both? Hotly Debated Topic Among Peers

I think this needs another read. It’s not a easy blog post for any of us to contemplate, but, to achieve emotional wellness perhaps it’s necessary to consider? My hope is in being able to really consider this as a possible connection, mind/body, we can use the awareness in our toolkit today

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Source: Fibromyalgia, Nature or Nuture, or Both? Hotly Debated Topic Among Peers

When You Get a Break from Pain

you-are-my-sunshine-4

https://thecandyperfumeboy.com/tag/sunshine/

During the last eight weeks I have experienced less pain than I have in years. In the 16+ years I have lived with fibromyalgia, this is only the second reduction in pain I have had the pleasure to be in. Despite many other medical issues during this time, emergency gall bladder surgery, stomach flu, the flu, and migraine headaches from my experience of being rear-ended, my chronic pain is at a low of 3-4 on the pain scale! Well, except for a once a week flare up of pain that keeps me bed ridden, but, hey I will take this exchange anytime!

I have been paying attention to the decrease in my normal achey body and wondering, why? Could it be that my gall bladder was taken out; that seems whacky as most fibromites experience surgery as exacerbating their pain levels (I have blogged about this before, explaining the need to discuss this phenomenon with doctors prior to surgery). I experienced this after my knee surgery two years, so that doesn’t feel right. Perhaps it is my mood, which has been better in general since my gall bladder surgery. Or, maybe it’s the fact that I lost an incredible amount of weight over the last year because I was so scared to eat anything! Let me explain this further; I was misdiagnosed with gastoparesis a year prior to the surgery, which led the doctors down the wrong road. Every time I went into the emergency room it was reinforced that my diet was causing the problem. The pain was off the charts and if it was caused by eating, then I wasn’t going to eat, at least not much! Definitely not the best way to lose weight.

Losing the weight finally allowed me to walk without a cane, to use the stairs with one leg at a time per stair, and to walk three miles at a time for the first time in three years. This leads me to think that possibly losing the pounds is the reason for less daily pain. I gained 60 pounds when I was pregnant with my daughter, 27 years ago. I never really lost that weight and gained a bit more over the years. Since my surgery I have been complaining of needing to buy a entire new wardrobe, two sizes or more, smaller than I previously wore. This has caused others in my life to politely ask me to stop whining as they are still trying lose their own weight, a reasonable request.

Still, it bothers me that I lost soo much weight so quickly; it can’t be healthy. However, if there has been two shining gifts from the loss; my usual 6+ daily pain (at least for now) and my ability to walk normally,and even drive my own car again. I thought I would never be able to do these things again. While I have decided that losing the pounds is the reason I am in remission, I am still caught in the thought process of fear that all chronic pain suffers seem to loop in. I find that I am frequently holding my breath for the other shoe to drop. The shoe of the fall and winter season. It’s glorious to be in less daily pain, don’t get me wrong, but I can’t help noticing that the season is changing. I am doing fairly well at pushing the negative thought away by breathing in the freedoms I am experiencing. So, for today I will remember to use my positive tool of just breathing.

The DEA is Again Making an AlternativeMedicine into a Schedule 1 Classified Drug

http://m.huffpost.com/us/entry/us_57c5c263e4b0cdfc5ac98b83

Hello my Peers!

If you follow my blog, you know that I believe we all need to find our own positive path to health. While I had never heard of the herbal medicine “kratom”, I now wish I had; before it goes underground. If your like me you desire symptom relief in many forms, and those tools that work best for you should be the least invasive to your physical, social, and psychological systems. It sounds like this may very well be better than western medicine opioids. I am not promoting this herbal therapy, no, I am promoting my discouragement of our governmental system of deciding which types of therapy are best for my body.

That said, I am also a proponent of research and the better good. Research into the benefits of our medicines feels more sketchy over the last decade. Money appears to be more of a motivator then real assistance. Even then, despite solid research,  we take the blame for abuse of medicines like opioids. So, somewhere in this new scheduling there appears to be a contradiction.

Mad always, do your own research before choosing your view.

Lyrica and Lawsuits; Off-label uses, fines, and Research Empirically Showing the Drug Inhibits New Brain Cell Growth

Dear Peers

Please research this! I received a informative article in my FB account and wouldn’t you know it, my phone is acting up and won’t copy any of the valid research sites I have gone ti in order to verify the tale. Type in the keywords above and get ready. I have been personally speaking out against this and other “black label” medicines since I began my blog.

Did you know in 1994 the Pitfizer company used this for migraines and bi- polar issues? Did you know they had the largest ever fine levied against them for their black market label usage?

I encourage you to do your homework and make an informed decision about your health tools. Whatever you decide, at least you will be aware.

Fibromyalgia, Nature or Nuture, or Both? Hotly Debated Topic Among Peers

livingyournewlifewithchronicpain

https://s-media-cache-ak0.pinimg.com/236x/5e/c1/d5/5ec1d5598552812ae2af5f511a093334.jpg https://s-media-cache-ak0.pinimg.com/236x/5e/c1/d5/5ec1d5598552812ae2af5f511a093334.jpg

A Link to a Scientific Discussion of how Genes, epigenetics, are at Play in All of Us

This post is inspired by a link shared by a FB friend on my home page today. I studied epigenetics for several years while attending university to obtain my MSW degree. What caught my attention about this article is the relationship epigenetics have to the heated debate among, my Peers with invisible illnesses, about whether long-term stress or genetics are the cause of Fibromyalgia. No matter what forum or blog I log on to, my Peers will likely admit to having lived through medium to intense stress in their lives. Yet, when the topic is introduced that our stress response, or our HPA (hypothamulas pituatrary axis), has burned out it’s ability to stop releasing the HPA stress hormones, leaving our bodies in a state chronic tension, there is a onslaught of denial that stress plays any real role in the…

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nccih.nih Link to Complimentary and Integrative Pain Methods

https://nccih.nih.gov/health/pain

Hi Fellow Survivors,

I subscribe to this link as I find it useful for complimentary methods of living well with chronic pain. There is a lot of information at this site, take what works for you, research various methods, and keep yourself up-to-date with integrative techniques. I haven’t always agreed with everything researched, but that’s ok. I create my own path to living my best and created this blog for you to do the same.

Note that a ” live chat” is coming up! Hope you find something new to add to your unique toolkit.