One More from Happify. Games to play that adjust your happy meter.

Evidence Based from Dan Siegleman

This is incredible! Reading further, there is a video on the opening page from Katie Couric. Watch it. As a MSW, I read several books of Siegleman’s (sp)(I am flaring so brain fog is here). I am now highly, highly recommending this to all the Peers out there.

Advertisements

Flare up of Fibromyalgia Pain Today; Overdid it for the last 3 days :*(

Happify Link for Living Well

I just saw this in a post on my FB page; not this exact one, but it lead me to this. Happify, something I knew zero about, is a free website that assists you in creating a happy, fulfilled life, no matter the circumstances. It has daily posts and tracks your progress! I am going to try it.

I had a huge flare today. Thankfully I have learned to prepare immediately for these days in bed. Water, various easy and healthy snacks, comfy clothes and a book, or Ipad for movies on Netflix for the times when I can be aware enough to take care of my nutrition needs and veg out on something. So, that is what I spent my day doing. I knew yesterday that today could be a day of extra pain, and it was. I have pushed through paperwork that sat ready to file for the last two years, run a few errands like the pharmacy, walked my dog to try and build up my bad knee and finally visited with a dear friend of mine from my teen years. We hadn’t seen each other in about 10 years. All in all, worth the flare 🙂

Hugs for the weekend, live Well.

Lucinda Tart, Fibromyalgia Peer Advocate/Life Coach Advisor

Another post from “Turning Straw Into Gold”; Well Meaning Advice on Cures

Things People May Suggest that Do Not Work for You; it’s OK

Yesterday, my wonderful neighbor suggested probiotics and living my life in the Ayurvedic style. This would assist or maybe cure me. Since I began living with Fibromyalgia I have had dozens and dozens of “answers” to my chronic pain. I understand these have all been given as loving/caring advice. Sometimes, I just feel irritated. They don’t stop telling me their beliefs, and, how can I kindly disagree? With family and close friends I can accomplish this. Still, I know I upset them. They truly believe in what they are handing me and leave the conversation believing I am just not willing to get well. Sigh.

I blog about my personal journey. I add links that I personally feel would assist me, and you. Understand that I have no agenda here. If something feels right for you, that is great. If not, I get it. Take what you want and leave the rest.

The above link is added because of I relate to all the advice. People just wish to help.

Lucinda Tart, Fibromyalgia Peer Advocate/Life Coach Advisor

Talking about the dreaded “Exercise” when Living Well with Fibromyalgia

DVD’s; Researched for Chronic Pain

Good Evening Peers,

I know that I have not done nearly enough for my body during the last 16 years; shame on me. When I was diagnosed, this was not emphasized as a means for less pain and better living. I sure wish I knew this on some intuitive basis. During the 10 years I spent in college and university, I was active. I walked to school, sat in classes and went out some evenings. Most evenings I just walked several blocks to the local movie theater, but, hey, it hurt but I stayed in shape. I had muscle mass and more movement in my arms and shoulders. There were definitely days when doing any of these things were impossible. Bed, sleep, eat and getting to the bathroom were my accomplishments.

During the last two years, my exercise, such as it is, has virtually disappeared. Again, being rear-ended just took me out of all ADL’s (activities of daily living). This is not the subject of this blog, but it is relevant to my pain. Now that I can use my right knee, a little better, (and my brain can process thoughts a bit better), exercise has become the most important item on my agenda. I am a member of the YMCA and plan to start water walking tomorrow :)! By the way, for anyone who is low income they offer inexpensive memberships. Check it out.

Walking my dog is a daily thing, but walking him for longer than 30 minutes is a big push. I enjoy letting him get his exercise but in order to let him run free I have to drive for 20 minutes to a large, open off-leash park. This doesn’t happen very often. Going water walking is only a 10 minute drive to the Y; doable. Of course there is the dreaded pain overload when I restart this regime, so getting back home, yikes. I will do it anyway. While the YMCA offers many other classes with a low income membership, they are tailored for the person who is fit, or trying to get fit and is able to push through the class. This is not me.

I found this fantastic link today. A 25 year, researched approach to helping those with Fibromyalgia exercise with adaptions for chronic pain. Finally! The DVD’s cost money, yes, they do. However, I intend to purchase the stretching DVD next month. Knowing that moving my body is healthy, will allow my muscle mass to rebuild and reduce my pain is absolutely worth $30. I enjoyed movement in my upper back. I loved being able to use my arms for simple tasks. I definitely desire less pain, which equals less medications.

Any Peer out there have any exercise tips?

Gentle Hugs,

Lucinda Tart, Fibromyalgia Peer Advocate/Life Coach Advisor

Article on creating being Well while surviving Fibromyalgia

Ways to live Well with Fibromyalgia

I just don’t believe we Peers can have enough options while we discover our way to live Well with our chronic pain. So, here is another article to assist with this important, important lifestyle choice(s).

Lucinda Tart, Fibromyalgia Peer Advocate/Life Coach Advisor

surrendering to grief

I too surrender to my grief when it comes crashing in. To avoid it creates great anger and that anger spreads to all that surrounds me. I encourage us all to let it come; it will then go.

Breathe in. Breathe out. Live.

feather

Today I am a failure

I’m failing at being a wife
I’m failing at being a mother
I’m failing at being a friend and a lover
I’m failing at saying what I want
I’m failing at asking for what I need
I’m failing at grieving
I’m failing at mourning

View original post 379 more words

The Brain and it’s Creation of Emotional Pathways

Hello Peers,

I have had to struggle with reacting since before living with Fibromyalgia. Lately, my reactions have become more intense. Without details, lots and lots of stressors/triggers, for too long. I found this article on the Wise Brain Bulletin. It really explains our brains circuitry without being too scientific. It also has ways to rewire our hardwired reactions.

I have used some of these before and intend to start reinserting them into my today. I hope this link assists you as well.

Lucinda Tart, Fibromyalgia Peer Advocate/Life Coach Advisor

Emotional Brain Reactions and Pathways Help

as no one ever has

This is a wonderful poem that I, as a chronic pain survivor, relate to as a metaphor for both hope, understanding and possibly a cure someday. Thank you for this beautiful imagery.

Breathe in. Breathe out. Live.

fdad4760cb3ecf07c466da72e851b596

The ocean breeze
flows up the hills
rustling the leaves
bringing with it saltiness
that crusts my cheeks

View original post 147 more words

Research on Connections in the Brain and Pain Sensitivity in Fibromyalgia

Different Processing in the Brain and Pain

Hello Peers,

This is an interesting study. Unfortunately, it doesn’t give enough details for me, a science nerd. It may be newer research, and, it may lead to a better mousetrap for our symptoms; even a cure. It is not a new concept. The idea that for some reason fibromyalgia syndrome survivors don’t process pain the same as the rest of the population. While looking for recent research, I found another piece that discussed it was in our spinal cords. In my opinion, the spinal cord gives the brain direct signals and the brain gives the spinal cord direct signals, so it’s inter-related.

Still, for those who are determined to find out the cause of this syndrome, this article gives some valid information. It would be more helpful if the researchers could figure out exactly what part of our brain, or spinal cord, is deficient. With that specific information in hand there might begin to be a cure. Currently we have lifestyle and medications that suppress symptoms. On the forum “Healingwell”, there is a wonderful Peer who understands chemistry and science very well. This peer regularly posts in-depth research with big terminology about the latest research. It is hard reading but highly informative.

I have never had a high tolerance for pain. Fibromyalgia is not the same as that for me though. My tolerance for pain and my experience of pain are not related. My pain is dramatically worse since I developed fibromyalgia 16 years ago. It is constant and only muffled with medications and changes in exercise, activities of daily living, sleep patterns and diet choices. Additionally, it can flare into pain that leaves me unable to function easily and without warning.

What interests me most about the brain connection is our brain fog. What is that caused by? Not being able to talk like other adults, usually all of a sudden, is embarrassing and discouraging. I recently developed another issue that stops me from being able to think clearly, so I am currently in a double whammy!  Anyway, I hope that the research, that is too simplified in this link, will continue to be replicated in varied tests so that we can address both pain and brain fog soon.

Thankfully, I don’t have brain fog today (just post concussion syndrome 🙂 )

Hoping all of my Peers are doing well today.

As always, if anyone finds a link that helps us or research that is useful, please post it in the comment section.

Lucinda Tart, Fibromyalgia Peer Advocate/Life Coach Advisor