A while back, I blogged about using self-advocacy; in that blog it was my experience with a medical professional. One of the items I brought up during that blog, and advocating session, was the fact that I had make-up on, matching outfit, and nice jewelry; even my hair was done up. I said, “I don’t look like I am in pain, do I”? This came to my mind today as I raced to get my outside appearance “put on”, in order to go to yet another medical professional. I began to wonder, “what if I looked sloppy, would I receive more help”? This is a completely unfair situation, one I should not have to even ponder.
There are many days when I am not so dapper looking. However, when I must go out, I wish to look nice. It helps me to feel better. But, would I be taken more seriously if I looked less kempt? I am uncertain, but living with hidden, chronic pain, I think the answer is yes. If I had another, hidden condition, I could look like whatever I desired when out and about. Medical professionals would immediately take me seriously when I entered their office. The general public would still not know I had a condition, or syndrome, no matter what hidden disability I suffered without a visual cue, such as a brace, crutch, wheelchair, or other.
All this pondering leads me to a personal conclusion; when necessary, I must inform those who need to know that I am in pain, despite my looks. Just like a person with a heart condition or diabetes would need to. When I don’t need to, I will take joy in putting on my lipstick, jewelry, and matching clothing. Actually, I will enjoy this when I go out no matter what the circumstances. Where is it written that I must look bad to feel bad?
Fatigue from Post Concussion/Tramautic Brain Injury
Cousins, Individaul Syndromes or?
Ever since I was rear ended in 2013, I have experienced fatigue. I sleep much worse than before the accident and I can not handle more than 4 or 5 hours a day of taking care of anything; this includes just sitting and making phone calls to schedule doctors appointments. I always had a bit of fatigue, but this is new to me. I feel fatigued again today, so felt it was time to bring up these two syndromes; separate syndromes or one syndrome.
I found the research article above that has some answers, but not enough. It does assist me in trying to decide what is going on, although my inner jury is still out. I was exhausted for two years after my accident and towards the end of those years was able to blog every day. I know find that more duties, like those doctor phone calls are piling up and the rest of my day is over when I am finished. I can’t handle my prior eight hour days anymore. I stay in bed for half the day. Just blogging this today is hurting my arms, wrist and fingers, along with exhausting me and causing a headache.
I finally have a clear enough mind, I suffer from some mild post cognitive issues after the accident, and am pretty sure that something tipped in my immune system during the accident and I do suffer fatigue. I felt it was my body healing for many months. It could also be brain fatigue, not to be confused with brain fog, but does it last forever? I don’t know the answer to this. I do know I will be starting a group for brain damage soon, so that should give me further answers.
Whether it’s my brain fatigue or chronic fatigue syndrome, I am tired every day. I am leaning towards the side of having both at once. Any of my peers who are wondering about their exhaustion, I hope this short rant assists you to begin to draw conclusions about what you need to do on your path to wellness.