The Longest Fibromyalgia Flare in Years; New Chronic Neck Pain

Three years ago I was rear ended while stopped at a red light. The van totaled my cars rear, subsequently totaling the car. It, and me, were shoved by the impact to the end of a large intersection. I have suffered through numerous physical and mental issues due to this, lately it’s my neck that’s wreaking the havoc I’m enduring every day, every minute.

The impact inuded whiplash, I was “out” during my trip across the streets, but know my head was bobbing away. I tried to see a specialist about my neck pain but with all my other injuries, the process got started and then I dropped the ball. I was overwhelmed with so many doctors appointments. My family helped me with virtually everything for two and a half years, I was really in bad shape. Today, I am in medium shape.

The last month or so, instead of experiencing neck pain several times a week and when I lay down to sleep, I am having chronic pain in the neck! Those of us with fibromyalgia know that our neck and shoulder area is already a tender area. My neck pain is increasing the trigger point pain in this area due to tight muscles or something else that I haven’t had diagnosed yet. All I know is it hurts! This combination has kept me on my coach, or in bed, for almost two weeks now. At first I was accepting of living with increased pain; thinking it would calm down. It’s not.

I am not feeling very calm about it today. I am feeling angry. And, that’s ok. But, it’s not going to be alright if it screams pain that stops me from all activities of living, except walking my dog, for much longer. The only thing I am accepting right now is that it’s time for me to go back to the specialist, and I need comfort food. Chocolate sounds really good right about now.

How Blogging for my Peers Assists Me

Good Afternoon Peers,

Its time for me to thank my Peers who read my posts. One year ago, I began this site. I was still struggling mightily with cognitive issues, from a rear end accident I experienced while stopped at a red light, three years past. I was not able to write a six page post without spending almost three hours figuring out context, spelling, and connection throughout the post. In looking back at the beginning of this blog, I find many spelling errors and dropped thoughts despite the careful scrutiny I used.  I desperately needed both a way to use my MSW degree and feel some sense of purpose.  This small blog gave me that positive purpose. It wouldn’t have happened without all of you.

I am better now, but not well. Along with increased areas of constant increased Fibro pain, I am struggling with PTSD. I have memory deficiencies and problems with executive functions. Critical thinking. This blog and therapy literally keep me on track in trying to both remember and apply my personal toolkit. Which is not to say I am able to use them as well as I did in the near past. I remain hopeful that in discussing my personal and professional positivity paths, some of them will stay in my daily use again. Maybe one day they will stay in mind all week, even all month.

While I know that I can still offer this, even teach these positive ADL’s, I do not know  how realistic my goals for myself are anymore.  I do know that without writing them down, without researching them, and without bringing them back to the forefront of my cognition, I would remain lost in negativity. I am enormously pleased that some of my peers have found issues they relate to, and others, new tools to help them get through their chronic pain!

Despite my new chronic medical issues, this site will always be a happy place for me to take my time and thoughtfully share with all of you.

XX😘

Change in Weather, it’s Fall, Here Comes the Rain and Wind; Adjusting My Goals

Well it’s the time of year I always try not to think about. The temperatures drop, the wind sneaks under my jacket, and water flows from the dark clouds as the barometric pressure drops. Despite keeping up my positive expectations for my life with fibro, the start of this change in our weather patterns brings a sense of fear in. Each year I believe I will do better when it hits, and each year I learn again that this is simply not how my body reacts.

While my body reacts with an increase in my pain levels, my mind  begins the internal struggle of acceptance. I find my thoughts at war.  The flares of pain put me back in bed making one part of my emotions lean towards hopeless. The mindful self jumps in and begins planning how to accept living well doing less. It’s interesting to observe.

I know my friends and family probably feel that I should be used to these increased pain changes and continue to get on with life. I could buy into this belief and get upset with myself, but to what end goal? Being angry at myself only serves to increase my pain by creating additional emotional stress.

Today I am in bed. I am observing these thoughts right now. I am not angry at my pain. Disappointed, yes. Tomorrow I will regroup my plans for my expectations of how much and where I can work, do household chores, and continue my exercise routine (one I just created). Today, I accept the need for rest.

Weight and Pain

http://www.arthritis.org/about-arthritis/types/fibromyalgia/articles/obesity-fibromyalgia.php

I recently wrote a blog piece about my lowered pain levels, or remission state, from my fibromyalgia pain. In that piece, I concluded that a year-long illness I went through, which resulted in a large weight loss was the contributing factor, so I have decided to follow it up with some actual research into this connection. And indeed, losing weight has had medical validity in pain intensity for many years now (see above link). My doctors always told me to lose weight, and to exercise. The discussion of  exercise also been a popular thread among my peers in online support rooms. Most stating it as helpful, if not with weight, at least with a healthier, happier state of mind.

I was always conflicted about this idea. I would come away from the doctors or the thread feeling shame and anger. It’s easy to tell someone with constant pain that they should get out there and walk, or swim, but it’s not so easy for that person to do. I know that just walking the dog could trigger pain for the entire next day; a very large price to pay! I want to interject here that while that is “not” occurring for me right now, it is apples to apples that it will start happening again soon (I have never experienced a remission of pain for this long, not in all my 17 years of living with fibromyalgia). Another point, in my current relief condition, is that I do still have medium pain every several days and a flare-up of pain large enough to send me to bed for the day every 7-9 days, so as I write this I am clear that this piece on weight and exercise applies to me as well as my peers. I felt shamed because I simply couldn’t create a routine of regular exercise, not with the pain threshold I live with. Anger followed because it was easier to project this feeling onto the doctors and my peers then it was to look deep inside myself and take personal responsibilty for my choices.

After losing all the weight and feeling the relief of waking up everyday at a pain level of 4 instead of the years of 5-6, I now feel ashamed that I didn’t try harder a long time ago. Lately I walk my dog farther every day then I did before, even when my pain level is at a raging 8. I make time to walk a slow three miles at least once a week. I am getting a donated recumbent exercise bike for the winter and will be applying for a low-income monthly membership to my local YMCA where I intend to use the swimming pool, take water aerobic classes, and indulge in some gentle and light weight lifting.  I am also looking into finding a free, local Tai Chi group.

I have not turned into an overnight super athlete, far from it. With the evidence of research and my own, personal experience it is obvious that the adage, “no pain, no gain” is true.  I certainly can not do all of these items weekly, but I can integrate them into an alternating monthly schedule. I will need to start slowly! My upper body is triggered very easily, simply driving the car for more than hour creates triggers in my shoulders, neck, and then head muscles (just typing this is aggravating my trapveious muscles). I am planning to begin exercising in chunks and in no more than 20 minute intervals. I will track what I actually do in my journal and then track how I feel immeaditely after, that night, and the next day. After a month or two of alternating exercising styles and journaling the resulting pain or no pain increase, I should be able to create a program that is tailored to my needs. Losing weight has definitely helped both my pain and my attitude, I am sure my seretonin levels are higher than they were, what a blessing it is for any of us to gain this important nuerotransmitter back. Despite the gift of this gain, losing so much weight has left me with wasted muscle mass (as we age we “useit or lose it”). I am keenly aware  that if I don’t start now, I may never start.

I try to share healthy, successful, positive living ideas in this blog. It would be hypocritical for me to share them and not live them myself. Besides, I love the hope of staying in a state of less pain! Try to find your weight loss path. Decide which exercise routine fits for you. Then, start tomorrow. XX

When You Get a Break from Pain

you-are-my-sunshine-4

https://thecandyperfumeboy.com/tag/sunshine/

During the last eight weeks I have experienced less pain than I have in years. In the 16+ years I have lived with fibromyalgia, this is only the second reduction in pain I have had the pleasure to be in. Despite many other medical issues during this time, emergency gall bladder surgery, stomach flu, the flu, and migraine headaches from my experience of being rear-ended, my chronic pain is at a low of 3-4 on the pain scale! Well, except for a once a week flare up of pain that keeps me bed ridden, but, hey I will take this exchange anytime!

I have been paying attention to the decrease in my normal achey body and wondering, why? Could it be that my gall bladder was taken out; that seems whacky as most fibromites experience surgery as exacerbating their pain levels (I have blogged about this before, explaining the need to discuss this phenomenon with doctors prior to surgery). I experienced this after my knee surgery two years, so that doesn’t feel right. Perhaps it is my mood, which has been better in general since my gall bladder surgery. Or, maybe it’s the fact that I lost an incredible amount of weight over the last year because I was so scared to eat anything! Let me explain this further; I was misdiagnosed with gastoparesis a year prior to the surgery, which led the doctors down the wrong road. Every time I went into the emergency room it was reinforced that my diet was causing the problem. The pain was off the charts and if it was caused by eating, then I wasn’t going to eat, at least not much! Definitely not the best way to lose weight.

Losing the weight finally allowed me to walk without a cane, to use the stairs with one leg at a time per stair, and to walk three miles at a time for the first time in three years. This leads me to think that possibly losing the pounds is the reason for less daily pain. I gained 60 pounds when I was pregnant with my daughter, 27 years ago. I never really lost that weight and gained a bit more over the years. Since my surgery I have been complaining of needing to buy a entire new wardrobe, two sizes or more, smaller than I previously wore. This has caused others in my life to politely ask me to stop whining as they are still trying lose their own weight, a reasonable request.

Still, it bothers me that I lost soo much weight so quickly; it can’t be healthy. However, if there has been two shining gifts from the loss; my usual 6+ daily pain (at least for now) and my ability to walk normally,and even drive my own car again. I thought I would never be able to do these things again. While I have decided that losing the pounds is the reason I am in remission, I am still caught in the thought process of fear that all chronic pain suffers seem to loop in. I find that I am frequently holding my breath for the other shoe to drop. The shoe of the fall and winter season. It’s glorious to be in less daily pain, don’t get me wrong, but I can’t help noticing that the season is changing. I am doing fairly well at pushing the negative thought away by breathing in the freedoms I am experiencing. So, for today I will remember to use my positive tool of just breathing.

Words of Wisdom for “Creating Better Health” and Less Stress by Toni B.

Hi Peers

I read this yesterday and it fell right into my belief system when it comes to doing my best while living with chronic pain. Toni’s choices are the same as mine, her articles always serve to affirm and remind me to keep striving towards my best.

Enjoy:

https: //www.psychology today.com/blog/turning-straw-gold/201604/when-you-re-chronically-ill-giving-versus-giving-in

Important Conversation Last Week With my Primary Care Physician and Opioids

http://blogs.fda.gov/fdavoice/index.php/2016/02/changing-course-a-new-approach-to-opioid-pain-medication-at-fda/

My treatments for chronic pain are changing. This is a personal decision I chose after several years of thought and a trial run varied products in the Medical Marijuana dispensaries. Every person who lives with constant pain must decide their own paths, we are each unique with unique pain patterns and life styles. Previously, I have tried the SSRI’s, the anti-seizure meds, and over-the-counter medications. They all failed to work for me. Either they didn’t touch my pain or they fogged up my brain more than it already gets fogged. I have been left with opioid use. Opioid use as prescribed is still very hard on our entire system and causes physical dependency. This creates a slight need to increase the dosage every few years to achieve the same relief.

In order to address my overall health and decrease my dosage, I began trying CBD first, then added in a low dose of THC at night and during flares. After doing this for the last three months, I am seeing a decrease in my opioids; not dramatic but by two pills on “normal” days and more on flare days! I blog about honest relationships and taking personal responsibility with your doctor. Last week, I informed my PCP about my use and my intention to radically decrease my opioid use over a period of several months.

He was completely supportive. He believes medical marijuana has many cross modalities benefits in pain control and much less toxic effects on our system. During this discussion he informed me that the FDA will be radically changing who is allowed opioids and who can prescribe it. This will occur within five years.

I feel that this is not common knowledge in our population and decided to inform my peers. I also decided to be transparent about my decisions in pain treatment. It won’t fit for everyone, it’s not simple for me! THC knocks me out cold, meaning it’s not an option if I go out or need to work. It could adversely effect me in job searches or closing a job offer. For me, natural, less toxic, pain relief is the first step to living better, the rest will sort itself out.

Please read, and research further, the above link.